Hello
Everyone. Thanks for checking in on Brooke. The fact that
you're here is appreciated. We're planning to use this blog to
communicate what's happening with Brooke to family and friends.
As much as we would love to communicate directly with everyone, it
seems a bit overwhelming so we hope this blog will do the trick.
Having said
that, we don't want this blog to send the message that we are
isolating ourselves and don't welcome people emailing, calling, or
stopping by. Although there will probably be times during her
treatment when visits will be difficult, Brooke and I would love to
hear from you.
Many people
have asked what they can do to help. Right now the main thing we are
asking for is for prayers on her behalf (Brooke typing now –
My family needs prayers, too!). Despite the news, Brooke feels fine
right now, and until the treatments start we're really doing okay.
I'll share
the details of what we know below, but we firmly believe that
everything is going to be okay. We're concerned, of course, and not
looking forward to what we know will be a rough road ahead with the
treatments, but like the early Saints, know that ultimately “All is
well.”
Having been
through this 14 years ago, we know that times like this can be the
best of times, but also the worst of times. As hard as it was in
1998, it was also a time when we drew closer together and closer to
God than we ever had before. Again, we're not looking forward to
fighting cancer, but we know that there will be blessings along the
way.
Brooke's
nephew, Devin, said it well when he posted a message to her on
Facebook. He said: “We have faith that it will all work out. You
are a fighter and this cancer should have learned its lesson the
first time. We know you can beat it again.” That is exactly the
plan!
So, here's
the basic story, at least as much as we know now. Brooke had
her annual mammogram on August 30th. After 14 years of being
cancer free, neither of us were worried about it or gave it a second
thought. The next week though, she got a call saying there was
an area where they needed to take another look.
So on
Wednesday, September 5th, Brooke had some additional mammograms.
They were still concerned so she then had an ultrasound, which
ultimately lead the doctor to do a biopsy that same day. As we
asked questions, the doctor was very straightforward with us in
telling us that it didn't look good.
On Friday,
September 7th, we got the call confirming that it was cancer.
The next step was to see the surgeon. That appointment happened
Thursday, September 13th. Although some things won't be confirmed
until the surgery and other test results come back, the surgeon did
tell us a lot about what is happening. Here is a quick rundown of
what the surgeon told us:
- It
looks like the cancer has been caught at a fairly early stage. This
is obviously great news, and what we're trying to focus on.
- It is
a fairly aggressive type of cancer and will need aggressive
treatment, meaning surgery (the exact surgery to be determined --
more about that later), chemo, and possibly radiation are all
coming.
- This
is a different cancer than Brooke had in 1998. It is on a different
side, and other markers and receptors are different based on the
pathology report.
- The
surgeon is ordering additional tests before the surgery to have as
much information as possible.
- Surgery
is tentatively scheduled for September 28th. They will
do three things during the surgery: 1. put in a port for chemo and
blood draws; 2. remove lymph nodes to see if the cancer has spread;
and 3. Brooke will have either a lumpectomy or mastectomy. The two
tests below will help her decide which surgery she'll have. If she
has a lumpectomy, she will need radiation. If she has a mastectomy,
there's no need for radiation.
- One of
these tests is a genetic test that we've known about for years, but
haven't wanted to do before. We haven't done it for a couple of
reasons: It's expensive and the results would simply give us one
more thing to worry about and wouldn't change anything. At this
point though, the results of this test will actually help Brooke
decide what surgery to have. If she tests positive for this genetic
defect, the likelihood of her getting breast cancer again (after
this time) is significantly higher. This would suggest a more aggressive surgery might make sense. If it's negative,
then perhaps a lumpectomy is the way to go.
- Brooke
will also undergo a thorough MRI to check for any other cancer spots
before the surgery.
- She
will need to have a few different types of chemotherapy. She will
likely have two types of chemo by IV. The first type of chemo is
very aggressive and has all the typical bad side effects and will
last 3 – 6 months. The second type of chemo is not as bad and
will last a year.
- She
will also need another type of chemo that is simply a pill that will
likely last for 5 years.
- Because
the chemo she'll be on for a year can be hard on her heart, she will
also have a baseline echo cardiogram before surgery.
So that was
the news from the surgeon. Brooke has already had the genetic test
(we're waiting for results), and is scheduled to have the MRI and
echo cardiogram on Wednesday, September 19th. Then we'll
need to make a decision about the type of surgery she'll have on the
28th.
If you've actually read this far, my apologies for being so long winded. Thanks again for your care and concern for Brooke.
We'll post more news as we have it.
- John
This blog is a fantastic idea. You guys already know you are loved but you may not know how much. My prayers, my thoughts, my love to all of you.
ReplyDeleteTHANK YOU for posting a blog....I have been on the 5 yr pill for 5 yrs now....it ends in Dec....the only side effect I've had is it makes me get really hot...so while everyone else is freezing....I've got a fan on me. I love to clean...so if I can ever come do the laundry or clean the house PLEASE let me know (seriously)!! I'll be quiet as a mouse & not disturb Brooke...(I know no one thinks I can actually BE quiet...but I can when I have to)...♥ sher 801-400-2911
ReplyDeleteDaniel 801-830-5432
I'm so sorry you have to go through all of thisBrooke. My prayers will be with you. I don't know how anyone could go through something like this without the knowledge of the gospel and plan of salvation in his/her life. And you have a great family. Love you. Amy Baldwin
ReplyDeleteI'm so glad you guys have decided to keep a blog. Thank you for all of the information! I have been thinking of you guys since we heard the news, and we will keep your whole family in our prayers. Love you guys!
ReplyDeleteI am so glad you decided to do this blog. My heart aches for you -again- and my prayers are with you. Hugs to you all.
ReplyDeleteGreat idea! It's Martie. (not technical enough to figure this out, thanks Dad!) Anyway, our thoughts and prayers are with you individually and as a family. We will keep your name on the prayer roll in D.C. Brooke. Our hearts and love go out to you and to John and each one of your precious kids. Thank heaven for families! We'll follow your progress and be cheering for you from the sidelines in VA!
ReplyDeleteBrook and John (from Pam and John King)-
ReplyDeleteAs you know, we went through this over the past year. Love and prayers from Davis County as well. A few notes that might be useful from our experience.
You mention a genetic test-I assume this means BRCA-we did it partly for Pam, but also for our daughters. If Brook has the gene, they have some risk as well, which they'll need to manage. The test for Brook is pricey, but if its negative it helps the next generation, and if she's positive, the test for the next generation is just a few hundred dollars (because with the Mom they check the whole genome, but if they find something in the Mom, they can "zoom in" on just a few genes for the next generation).
You didn't mention whether the tumor is estrogen sensitive-Pams was-the "five year pill" she is taking isn't chemotherapy but is tamoxifen to discourage estrogen production. If it is estrogen receptor positive you will likely have an oncotype test that will let you know the probability of a re-occurence.
I trust you are with DMBA (insurance) now. We had it many years ago-best insurance we have ever had by a mile. Hope it works well for you.
Finally, keep in mind that one of your cousins (Vernon) is an oncologist. He was a terrific resource and a wonderful way to cross check and verify things (cancer treatment is not something you want to feel uncertain about).
Love,
Pam and John
Wow! One of the "best of times" aspects of this is that those that love you have a way of not only hearing more about how your family is doing, but also to see the love that surrounds you in the comments that have been posted just today! Timm and I send our love and prayers too, and appreciate a way to know how the days are going for you and the possibilities that lie ahead. Wishing you some extra together time this next couple of weeks!
ReplyDeleteJen
Good luck Cannons. I'll be thinking of you.
ReplyDeleteAngie Oakes Stallings